Agenda
Day 1: Monday, September 24, 2007
9:00am – 9:05am
Introduction
Brian Beamish
Assistant Commissioner
Office of the Information and Privacy Commissioner / Ontario
Brian Beamish
Assistant Commissioner
Office of the Information and Privacy Commissioner / Ontario
Brian Beamish is the Assistant Commissioner (Access) for the Office of the Information and Privacy Commissioner/Ontario. A member of the IPC's executive committee, he directs the IPC's Tribunal Services Division. Brian joined the IPC as Director of Policy and Compliance in 1999. Previously, he held a number of positions in the Ontario Public Services, particularly with the Ministries of the Solicitor General and Correctional Services. A graduate of the University of Toronto Law School, Brian is a member of the Law Society of Upper Canada.
9:05am – 9:30am
Welcome to Conference and Opening Remarks
Dr. Ann Cavoukian
Information and Privacy Commissioner of Ontario
Office of the Information and Privacy Commissioner / Ontario
Dr. Ann Cavoukian
Information and Privacy Commissioner of Ontario
Office of the Information and Privacy Commissioner / Ontario
Dr. Ann Cavoukian is recognized as one of the leading privacy experts in the world. An avowed believer in the role that technology can play in protecting privacy, Dr. Cavoukian's leadership has seen her office develop a number of tools and procedures to ensure privacy is protected in Ontario - and around the globe.
Dr. Cavoukian is Ontario's first Information and Privacy Commissioner to be re-appointed for a second term. Initially appointed in 1997, her role in overseeing the operations of the freedom of information and privacy laws in Canada's most populous province was extended to 2009. Like the Auditor General, she serves as an officer of the legislature, independent of the government of the day.
Businesses across North America and Europe regularly seek Dr. Cavoukian's advice and guidance on privacy and data protection issues. She has been involved in a number of international committees focused on privacy, technology and business. Her ground-breaking 1995 paper with the Netherlands Data Protection Authority on advancing privacy protection through the pursuit of privacy-enhancing technologies or PETs is now part of the industry lexicon.
Whenever a privacy, security or access issue hits the news, Dr. Cavoukian is one of the first experts called in by the media to make sense of it. She often serves the role of "translator" - breaking down complex issues into understandable terms and concepts. She is also frequently called upon to speak at leading international forums.
9:30am – 10:30am
Genetics and Privacy
Ken Anderson, Moderator
Assistant Commissioner
Office of the Information and Privacy Commissioner / Ontario
Trudo Lemmens
Associate Professor
Faculty of Law
University of Toronto
Graeme Laurie
Professor of Medical Jurisprudence
School of Law
University of Edinburgh
Lukas Gundermann
ULD - Independent Centre for Privacy Protection
Germany
Harriet Pearson
Vice President, Regulatory Policy & Chief Privacy Officer
IBM Corporation
Advances in genetic testing are expanding the potential to predict illnesses and individual characteristics. Family members, spouses, insurers, employers, and governments all have an interest in our genetic information. What are the privacy implications of genetic testing and what safeguards are needed to ensure genetic privacy?
Ken Anderson, Moderator
Assistant Commissioner
Office of the Information and Privacy Commissioner / Ontario
Ken Anderson is Assistant Commissioner (Privacy) for the Information and Privacy Commissioner of Ontario. Ken taught privacy law at the University of Ottawa Law School for three years and is a frequent speaker on access and privacy matters. Ken received his law degree from the University of Western Ontario, as well as a degree in business administration from the Ivey School at the University of Western Ontario.
Trudo Lemmens
Associate Professor
Faculty of Law
University of Toronto
Trudo Lemmens is Associate Professor at the Faculties of Law and Medicine of the University of Toronto. Over the last four years, he was a member of the Institute for Advanced Study in Princeton, a visiting fellow of the Royal Flemish Academy of Belgium for Science and the Arts, and a visiting professor at the K.U.Leuven (Belgium) and the University of Otago (New Zealand). His research currently focuses on how law and regulation contribute to the promotion of ethics standards in the context of medical research and biotechnological innovations. Several of his publications deal also with the legal and ethical implications of genetic testing, focusing particularly on concerns about discrimination in insurance and employment. His recent publications include the co-authored book Reading the future? Legal and Ethical Challenges of Predictive Genetic Testing (Montreal: Les Éditions Thémis, 2007, co-authored) and the co-edited volume Law and Ethics in Biomedical Research: Regulation, Conflict of Interest, and Liability (Toronto: University of Toronto Press, 2006).
Graeme Laurie
Professor of Medical Jurisprudence
School of Law
University of Edinburgh
Graeme Laurie is Professor of Medical Jurisprudence at the University of Edinburgh and Director of the Arts and Humanities Research Council (AHRC) Research Centre for Studies in Intellectual Property and Technology Law. His research interests include the role of law in promoting and regulating science, medicine and technology. He is Chair of the Privacy Advisory Committee for Scotland, and of the Ethics and Governance Council of UK Biobank. His monograph, "Genetic Privacy: A Challenge to Medico-Legal Norms", was published by Cambridge University Press in 2002.
Lukas Gundermann
ULD - Independent Centre for Privacy Protection
Germany
Lukas Gundermann holds two German law degrees. After working as an assistant researcher in the field of Public Law, he joined the Unabhängiges Landeszentrum für Datenschutz (ULD - Independent Centre for Privacy Protection - the regional data protection authority of the German State of Schleswig-Holstein) in 1996. He has a comprehensive record in data protection, including issues related to e-government, internet, biometrics. Lukas Gundermann worked as a long term advisor and as a short term expert in several EU funded projects aiming to support data protection authorities in new EU member states and candidate countries. He is currently overseeing the ULD's activities in the field of health care and social security, including the ULD's participation in a project on data protection audit criteria with regard to biobanks (www.bdc-audit.de). Numerous publications and presentations on data protection and related issues.
Harriet Pearson
Vice President, Regulatory Policy & Chief Privacy Officer
IBM Corporation
One of the Fortune 1000's first chief privacy officers, Harriet has since the year 2000 been responsible for IBM's global information policies and practices affecting more than 320,000 employees and tens of thousands of clients and individuals. She is known for pushing the envelope and setting progressive corporate policies and practices that build trust in areas as diverse as health care and genetics to RFID and international data flows. As regulatory policy leader for IBM, a new role, Harriet leads the development and execution of a proactive regulatory and policy strategy across IBM's legal function. Harriet reports to IBM's SVP Legal and Regulatory Affairs & General Counsel. Harriet has been a member of IBM's senior leadership team of approximately 300 executives, appointed by the Chairman and CEO, since late 2000.
Harriet holds an appointment as Adjunct Lecturer in Georgetown University's Communication, Culture & Technology Master's program, where she teaches a seminar on Trust, Privacy & Security. She is a Board member of the International Association of Privacy Professionals, the Center for Information Policy Leadership, and the Anatolia College (a private American K-thru-college school in Greece).
10:30am – 11:00am
Morning Break
11:00am – 12:00pm
RFID Uses in Health Care
Dr. Ann Cavoukian, Moderator
Information and Privacy Commissioner of Ontario
Office of the Information and Privacy Commissioner / Ontario
Art Smith
Founder and CEO
GS1 Canada
Dr. Alexander Dix
Commissioner for Data Protection and Freedom of Information
Berlin State Parliament
Victor Garcia
Chief Technology Officer
Hewlett-Packard (Canada) Co.
Joan Antokol
Partner
Baker & Daniels
RFID tags have a broad range of potential applications in the health sector, from tracking wandering patients to preventing the counterfeiting of prescription drugs. What are these applications and what are their associated benefits and threats?
Dr. Ann Cavoukian, Moderator
Information and Privacy Commissioner of Ontario
Office of the Information and Privacy Commissioner / Ontario
Art Smith
Founder and CEO
GS1 Canada
Art Smith is founder and Chief Executive Officer (CEO) of GS1 Canada, a not-for-profit organization dedicated to fostering the continuous development and adoption of global e-commerce standards.
Art formed the Electronic Commerce Council of Canada (the forerunner of GS1 Canada) in 1997. Prior to this, he had an impressive track record in the Canadian retail industry with the Hudson's Bay Company and Dylex, most notably as President of Biway. During the course of his career, he successfully applied his expertise and aptitude for leading edge technology, implementing the first online retail loyalty program in North America (Club Z), developing global classification schema, and implementing the first home shopping pilot in North America.
Art has an MBA from the University of Western Ontario and a BMath (Computer Science) from the University of Waterloo. He lectures at York University on loyalty marketing and supply chain management. A proud Nova Scotian, Art lives in Mississauga with his wife and their two daughters.
Dr. Alexander Dix
Commissioner for Data Protection and Freedom of Information
Berlin State Parliament
Dr. Alexander Dix, LL.M. (Lond.), was elected as Commissioner for Data Protection and Freedom of Information by the Berlin State Parliament (Germany) in June 2005. Previously he had been Commissioner in the State of Brandenburg for seven years. He has 22 years of working experience in the field of data protection.
Dr. Dix is a specialist in telecommunications and media and has dealt with a number of issues regarding the cross-border protection of citizen's privacy. He chairs the International Working Group on Data Protection in Telecommunications ("Berlin Group") and is a member of the Art. 29 Working Party of European Data Protection Supervisory Authorities. In this Working Party he represents the Data Protection Authorities of the 16 German States (Länder).
A native of Bad Homburg, Hessen, Alexander Dix graduated from Hamburg University with a degree in law in 1975. He received a Master of Laws degree from London University after studies at the London School of Economics and Political Science in 1976 and a Doctorate in law from Hamburg University in 1977. He has published extensively on issues of data protection and freedom of information.
Victor Garcia
Chief Technology Officer
Hewlett-Packard (Canada) Co.
Victor Garcia is managing principal for the Wireless and Mobility Program Office at Hewlett-Packard Canada. He is responsible for providing vision, strategy and leadership in cross-industry wireless, mobility, RFID and i-Building sector initiatives, leveraging HP's well-established reputation as a worldwide IT solutions company.
Garcia joined Compaq in October 1999 as director of Professional Services for Central Canada. Over the past 24 years, he has gained international recognition in the management and information technology consulting field, holding executive management and trusted advisor positions and delivering large-scale, complex technology projects.
Garcia's career has included holding senior management positions with firms such as Magna International Inc., Cachet Carrington Limited, Wintec Energy Corporation and Olivetti. From 1994-1999, Garcia was a member of multiple federal and provincial government trade missions, including Team Canada 1994 and Team Canada 1998 commercial missions to Latin America led by Canadian Prime Minister Jean Cheretien, actively participating and sponsoring activities designed to improve business relations with participating trade countries,conducting business development, marketing technology solutions to public sector clients and leading technology programs and collaborative joint ventures involving business, universities and governments.
Joan Antokol
Partner
Baker & Daniels
Joan Antokol is recognized internationally for her work in privacy and data protection. She leads the firm's privacy and data protection group and also assists clients on document management practices.
Before joining Baker & Daniels, Joan was a Vice President and the Global Head of Privacy at Novartis, where she established and managed the Global Privacy and Data Protection Department for companies in the Novartis Group. She has worked closely with European and U.S. privacy regulators and sits on several international privacy committees.
Joan is a frequent presenter at privacy conferences in the U.S. and Europe, and she has particular expertise in a number of aspects of privacy and security, including medical and clinical research, addressing and preventing security breaches, and transferring personal information between countries. Joan has a background in litigation, health authority inspections and drug safety.
12:00pm – 2:00pm
Lunch and Keynote Presentation
Lunch to be served in Atrium.
Dr. Ian Kerr
Canada Research Chair in Ethics, Law & Technology
University of Ottawa
Minding the Machines
The North American health agenda is investing significant resources into embedding intelligence into machines and machine-parts into people. In this lunchtime keynote, Ian Kerr, Canada Research Chair in Ethics, Law and Technology explores the future of privacy and autonomy in the coming era of human-machine mergers. Focusing on emerging health technologies in the fields of sensor networks, neuroscience and nanotechnology, Dr. Kerr describes the shifting goals of medicine and its implications for patients and health administrators. Will a 'transhumanist' model of health prevail and what will it mean for privacy?
Dr. Ian Kerr
Canada Research Chair in Ethics, Law & Technology
University of Ottawa
Ian Kerr holds the Canada Research Chair in Ethics, Law and Technology at the University of Ottawa, Faculty of Law, with cross appointments to the Faculty of Medicine and the Department of Philosophy. In addition to his work on emerging health technologies, bioethics and the human-machine merger, Dr. Kerr has published books and articles on numerous topics at the intersection of ethics, law and technology and is currently engaged in two large research projects: (i) On the Identity Trail, a four year privacy project supported by one of the largest ever grants from the Social Sciences and Humanities Research Council, examining the impact of information and authentication technologies on our identity and our ability to be anonymous; and (ii) An Examination of Digital Copyright, supported by a large grant from Bell Canada and the Ontario Research Network in Electronic Commerce, examining various aspects of the current effort to reform Canadian copyright legislation. His devotion to teaching has earned him six awards and citations, including the Bank of Nova Scotia Award of Excellence in Undergraduate Teaching, the University of Western Ontario's Faculty of Graduate Studies' Award of Teaching Excellence, and the University of Ottawa's AEECLSS Teaching Excellence Award. Dr. Kerr sits as a member on numerous editorial and advisory boards and is co-author of Managing the Law: The Legal Aspects of Doing Business, a business law text published by Prentice Hall and used by thousands of students each year at universities across Canada.
2:00pm – 3:00pm
Electronic Health Records
Debra Grant, Moderator
Senior Health Privacy Specialist
Office of the Information and Privacy Commissioner / Ontario
Peter Waegemann
CEO
Medical Records Institute
Richard Alvarez
President and CEO
Canada Health Infoway
Dr. Michael Zaroukian
Chief Medical Information Officer
Michigan State University
Cradle-to-grave EHRs have the potential to revolutionize the ways in which health care is delivered. What are the privacy issues relating to EHRs and what safeguards can be built into their design and implementation to ensure that they are not used and disclosed inappropriately?
Debra Grant, Moderator
Senior Health Privacy Specialist
Office of the Information and Privacy Commissioner / Ontario
Debra Grant is a Senior Health Privacy Specialist for the Information and Privacy Commissioner for the Province of Ontario (IPC), the independent body that oversees the provincial Freedom of Information and Protection of Privacy Act, the Municipal Freedom of Information and Protection of Privacy Act, and the new Personal Health Information Protection Act. She graduated in 1991 with a Ph.D. in social psychology from York University. For the past fifteen years, she has worked for the IPC conducting research and developing policies on access and privacy issues in relation to a wide variety of topics including personal health information. She has worked on numerous submissions to the Ontario government on existing and proposed public and private sector privacy legislation and provides expert advice to government and health sector organizations on privacy issues in relation to personal health information.
Peter Waegemann
CEO
Medical Records Institute
C. Peter Waegemann is the Chief Executive Officer of the Medical Records Institute, a Boston-based, international forum for sharing knowledge, experience, and solutions in the journey toward the electronic health record and related technologies. He is also Acting Director of the Centre for the Advancement of Electronic Health Records, Ltd. (United Kingdom). Peter is an international leader in health informatics with special expertise and interest in electronic patient record systems, standards, networking, mobile health, telemedicine, and the creation of a national health information infrastructure.
Peter is a frequently sought-after speaker on e-Health and electronic health records. Over the past 5 years, he was invited to present 480 lectures worldwide. His reputation as a thought leader in the field of e-Health and electronic health records is unsurpassed. His keynote presentations are thought provoking and are designed to give attendees a sense of both excitement and critical analysis.
Richard Alvarez
President and CEO
Canada Health Infoway
Richard Alvarez is a leader in Canadian health care. He is known for taking on challenging mandates and building successful organizations.
As president and chief executive officer of Canada Health Infoway, he has been a catalyst for accelerating the development of electronic health records in Canada. He has established strong, collaborative relationships with the federal, provincial and territorial governments and other stakeholders as the foundation for solid progress. He has articulated a broad national vision for reforming Canada's healthcare system through innovation and technology. On the international front, he has helped to position Canada as a world leader in healthcare renewal.
Prior to his role at Infoway, Mr. Alvarez also played a role in harnessing the power of information to improve health care. As former president and chief executive officer and ex-officio board member of the Canadian Institute for Health Information (CIHI), he helped CIHI evolve into a well-known and respected organization, with strong ties to the research community, that disseminates relevant healthcare policy material across Canada and internationally.
Dr. Michael Zaroukian
Chief Medical Information Officer
Michigan State University
Michael H. Zaroukian, MD, PhD, FACP is a practicing internal medicine specialist, clinic director, and Chief Medical Information Officer at Michigan State University. Dr. Zaroukian is responsible for advancing EMR use in the faculty practice to support care delivery, quality improvement, research, and health professions education. He is also a principal investigator on a Regional Health Information Organization (RHIO) grant.
Dr. Zaroukian serves on the MSU CyberSecurity Initiative Workgroup and the University Privacy Board. He co-chairs the Michigan State Medical Society IT Committee, and is a member of the American Medical Association (AMA) Health Information Technology Advisory Group and the American College of Physicians (ACP) Medical Informatics Subcommittee. Dr. Zaroukian is also past-president of the Centricity Healthcare User Group, advocating on behalf of 10,000+ physicians to continuously enhance the features, functionality and optimal use of Centricity© EMR.
Dr. Zaroukian is a frequently invited consultant to academic health centers and other health systems striving to implement EMR systems in the USA, Canada and Europe. He is a regular speaker at Health Information and Systems Society (HIMSS) and Integrating the Healthcare Enterprise (IHE) conferences. He has recently testified before US Government agencies regarding the privacy, confidentiality and security of health information, particularly on issues surrounding identity proofing and user authentication methods to provide access to information in an EMR, as well as consumer controls for sensitive health records.
3:00pm – 3:30pm
Afternoon Break
3:30pm – 4:30pm
Anonymization and Health Research
Michelle Chibba, Moderator
Manager, Policy & Compliance
Office of the Information and Privacy Commissioner / Ontario
Jeff Jonas
Chief Scientist
IBM Entity Analytics
Dr. Bruno Baeriswyl
Privacy Commissioner
State of Zurich
Switzerland
Dr. Khaled El Emam
Associate Professor
University of Ottawa
Associate Professor
Anonymizing personal health information has allowed health researchers to use this highly sensitive information. But, as the amount of personal health information collected in databases grows, and as improvements in technology make information linkages easier and more ubiquitous, the challenges to privacy also grow more complex even when the data is de-identified. In this session, you will hear from 3 well-known experts in privacy, health research and information technology who have all given considerable thought to addressing these challenges so as to ensure that health research continues in a manner that ensures security and privacy.
Michelle Chibba, Moderator
Manager, Policy & Compliance
Office of the Information and Privacy Commissioner / Ontario
Michelle Chibba is Manager, Policy & Compliance at the Information and Privacy Commissioner/Ontario. Michelle brings to this position significant policy and planning experience in the health sector. Prior to joining the IPC, Michelle managed several strategic initiatives at the Ontario Ministry of Health and Long-Term Care. Throughout her career, Michelle has worked with many of the stakeholder groups in the health sector including professional association, hospitals, long-term care and health care companies. Michelle received her Masters degree from Georgetown University, Washington, D.C. where she focused on the health sector and ethics.
Jeff Jonas
Chief Scientist
IBM Entity Analytics
Mr. Jonas is chief scientist of the Entity Analytic Solutions group and an IBM Distinguished Engineer. Mr. Jonas is responsible for shaping the overall technical strategy of next generation identity analytics and the use of this new capability in the overall IBM technology strategy. The IBM Entity Analytic Solutions group was formed based on technologies Mr. Jonas developed as the founder and chief scientist of Systems Research & Development. Mr. Jonas is a member of the Markle Foundation Task Force on National Security in the Information Age and actively contributes his insights on privacy, technology and homeland security to leading national think tanks, privacy advocacy groups and policy research organizations. Most recently Mr. Jonas has been named a senior associate to the Centre for Strategic and International Studies.
Dr. Bruno Baeriswyl
Privacy Commissioner
State of Zurich
Switzerland
Dr. Baeriswyl is the current Privacy Commissioner, State of Zurich, Switerland. He is Chairman of the Managing Committee of the Swiss Association of Data Protection Commissioners and Chairman of the Board of the Foundation for Privacy and Information Security Switzerland. In Addition, Dr Baeriswyl is Co-editor of Digma the Swiss magazine for Data Law and Information Security. He completed his law studies at the University of Zurich, his post-graduate study at the Swiss Federal Institute of Technology, Zurich and received his Doctorate in Law from the University of Zurich.
Dr. Khaled El Emam
Associate Professor
University of Ottawa
Associate Professor
Dr. Khaled El Emam is an Associate Professor at the University of Ottawa, Faculty of Medicine and the School of Information Technology and Engineering. He is a Canada Research Chair in Electronic Health Information at the University of Ottawa. Previously Khaled was a Senior Research Officer at the National Research Council of Canada, and prior to that he was head of the Quantitative Methods Group at the Fraunhofer Institute in Kaiserslautern, Germany. In 2003 and 2004, he was ranked as the top systems and software engineering scholar worldwide by the Journal of Systems and Software based on his research on measurement and quality evaluation and improvement, and ranked second in 2002 and 2005. He holds a Ph.D. from the Department of Electrical and Electronics, King's College, at the University of London (UK).
4:30pm – 4:45pm
Closing Remarks
Dr. Ann Cavoukian
Information and Privacy Commissioner of Ontario
Office of the Information and Privacy Commissioner / Ontario
Dr. Ann Cavoukian
Information and Privacy Commissioner of Ontario
Office of the Information and Privacy Commissioner / Ontario

